Dear Friends,
Greetings from Albinism Umbrella,
As we reflect on our journey thus far, it has been amazing and hope to continue in this stride. Albinism Umbrella has now existed for 5 years and as an organisation, we believe we are able to serve our community more effectively and efficiently with renewed strength from the milestones achieved. Our Vision “A society in which persons with albinism are dignified and realize their full potential” is still relevant and are relentlessly pursuing it.
We are grateful to all the partners who have supported us in the many activities done in the past years. Most notably we can prove that we are creating some impact with more persons with albinism being able to speak for their rights. This is evidenced in the districts of Hoima, Buikwe, Luweero, Lira, Kamuli, Bundibugyo, Wakiso, and Kampala which took center stage in the year 2022 with various interventions. These particularly benefited from Self Awareness Self advocacy (SASA) trainings which boasted their self-esteem.
With the conclusion to the spatial mapping research across the country which also highlights the refugee community in Uganda, Albinism Umbrella is now well grounded to do evidenced based advocacy so as to implement the recommendations given to different stakeholders.
The National Action Plan for Persons with Albinism dubbed NAP, is a great milestone for Uganda as a country. Uganda is the 4th country in Africa to domesticate the African Plan of Action on Albinism. (Plan of Action 2021-2031). The Government demonstrated support for persons with albinism by adopting this plan and we call upon you to come with us on this journey to freedom for persons with albinism.
In this year, our biggest dream is to make sunscreens regularly available to every person with albinism. This is indeed the desired state and we hope to start the journey into local sunscreen production. We welcome all partners to make this a reality. We are also keen to serve the more remote areas of Uganda and our sincere appreciation goes to Christian Blind Mission(CBM) for the opportunity to serve Kamwenge and Kyegegwa in this year.
We cannot do without the support of our dear donors, Voice program has been immensely beautiful thus far, the Constellations team and the global team were so amazing with lots of learning from the continent. Disability Rights Fund, Aga Khan foundation, we are grateful for the lives empowered.
Together we contribute to a society in which people with albinism are dignified and realize their full potential.
Let us enjoy humanity together!
Olive Namutebi
Executive Director
Last modified: January 8, 2024
