Albinism Umbrella

On Tuesday, 21 July, 2026, Albinism Umbrella convened an Interface Meeting with Ministries, Departments and Agencies (MDAs) and National Organizations of Persons with Disabilities (NOPDs) at Hotel Africana to review progress on the National Action Plan for Persons with Albinism (2020–2025) and discuss priorities for the next phase.

The meeting was supported by the Embassy of Denmark in Uganda, in partnership with the Embassy of the Kingdom of the Netherlands in Uganda, the Embassy of Sweden, the Embassy of Ireland, and Christian Blind Mission (CBM), bringing together government representatives, development partners, and organizations of persons with disabilities.

key highlight was the announcement by Agnes Nampeera Bulega, Principal Rehabilitation Officer at the Ministry of Gender, Labour and Social Development, that the Government will launch the National Child Disability Assistance Programme during the 2026/2027 financial year. The programme will begin in 27 local governments as a pilot, with children with albinism among the beneficiaries before expanding nationwide.

Nampeera also highlighted achievements under the current National Action Plan, including the development of Uganda’s first National Action Plan for Persons with Albinism, coordination of National Albinism Awareness Day commemorations, improved access to the National Special Grant, and economic empowerment through the Uganda Women Entrepreneurship Programme, which has supported 25 groups of persons with albinism.

Representing the Ministry of Health, Dr. Moses Muwanga, Assistant Commissioner for Community Health, Disability and Rehabilitation, reaffirmed the Ministry’s commitment to equitable healthcare for persons with albinism. He noted that efforts are underway to strengthen access to essential medicines, including sunscreen once it is added to the Essential Medicines List, and called for continued collaboration to improve healthcare services.

The meeting also acknowledged persistent challenges, including limited data on persons with albinism within the health system and ongoing stigma that continues to hinder access to services.

Albinism Umbrella Executive Director Olive Namutebi presented the priorities of the proposed National Action Plan for Persons with Albinism (2026–2031), which focuses on strengthening public awareness, improving access to healthcare and inclusive education, expanding economic empowerment and social protection, enhancing protection from discrimination and violence, and improving coordination, data, and accountability.

The meeting concluded with a renewed call for all Ministries, Departments and Agencies, development partners, and Organizations of Persons with Disabilities to strengthen coordination and regularly share progress reports to ensure the effective implementation of the next National Action Plan and advance the rights and inclusion of persons with albinism in Uganda.

Last modified: July 22, 2026