Kisule Herman George William, father to Whitney, child with albinism shares his experience raising her.
Please introduce yourself
My name is Kisule Herman George William, a resident of Masajja in Kampala District. I am 41 years old and the father of Whitney Nakawoya Percy. By profession, I am a painter.
How was the experience when you had Whitney in the hospital?
Whitney was born at Kisenyi Government Referral Hospital. The doctors asked about our clan or tribe. At first, I thought her light skin might be influenced by my work environment, since I often worked indoors with white people. I hoped her complexion would change with time. I was not afraid or alarmed, as I believed she was simply light-skinned. There is no known history of albinism in either my lineage or her mother’s, so I accepted her without fear.
What are some of the challenges that you have faced in raising her?
The main challenge has been discrimination. At school, teachers treated her differently. I had to confront them, insisting that she has the same blood as other students. In the village, some people discriminated against me when she was born, but I chose to remain strong and leave it all to God.
What advice would you give to parents of children living with albinism?
I encourage parents, especially fathers, to be present and supportive. All children deserve love and care, regardless of their condition.
How has Albinism Umbrella been helpful to you?
I am grateful to Albinism Umbrella, particularly Madam Olivia and Phiona Nantaba, for their encouragement and support. They have provided sunscreen and other assistance. Through Albinism Umbrella, I realised Whitney is not alone, and that gave us strength.
Tell us about how you met Albinism Umbrella.
I first learned about Albinism Umbrella through Whitney’s mother, who met some people in town and received their contact information. I took the responsibility to meet them at their old offices when Whitney was six years old. She is now almost twelve. During that first meeting, they asked how I cared for her, and I shared my experiences.
WHITNEY SPEAKS
Please tell us about yourself and your life:
My name is Nakawoya Percy Whitney from Massajja, and I am 12 years old
I have faced some challenges, being called names like ‘Namagoya’, and I have left them in God’s hands. When my father told me to listen or believe in the kids’ words and not react to whatever they said, I followed his advice.
I am now living my life and just hanging out with my friends, not caring about the other kids.
So what would you want to be when you grow up?
I want to become a doctor when I grow up.
Why a Doctor?
Because the doctors save people’s lives.
Last modified: July 14, 2026
